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Ebook Juvenile arthritis in Australia

Arthritis is not only a disease of the elderly; it affects younger people as well. An estimated 4,600 Australian children in 2004–05 had arthritis. While remission is common, the disease can become chronic and result in complications over time. Juvenile arthritis also has adverse effects on children’s growth and musculoskeletal development.

Juvenile arthritis juvenile rheumatoid arthritis or juvenile chronic arthritis as it is sometimes referred to was declared a focus area under the Better Arthritis and Osteoporosis Care (BAOC) budget initiative of the Australian Government in 2006.

The disease deserves focused attention because:

  • It affects children in the prime of their growth and development. This may lead to activity limitations and physical deformities more commonly and much earlier in life, requiring a greater and long-term need for health care services.
  • The limitations imposed by chronic pain, in particular the inability to run and play with other children, create an acute sense of helplessness. This may limit participation in school activities, affect many day-to-day activities and cause much anxiety.
  • The disability associated with juvenile arthritis may also have a significant impact on a child’s own health perception and body image.
  • The management of juvenile arthritis invariably involves parents and other family members, which may impact on family dynamics.

Over the last several years, there has been a greater awareness of the need to manage the disease early and minimise its impact. With advanced treatment options now available it is important to recognise and treat this disease as soon as possible.

Contents

Acknowledgments
Abbreviations
Summary
1 Introduction

    What is juvenile arthritis?
    Juvenile vs adult arthritis
    History and classifications
    Monitoring juvenile arthritis
    This report

2 Nature of the problem

    The clinical problem
    Diagnosis
    Causal mechanisms and risk factors
    Prognosis, complications and comorbidity

3 Magnitude of the problem

    Incidence and prevalence
    Activity limitation
    Health care service use
    Mortality

4 Impact on growth, functioning and quality of life

    The experience of arthritis
    Long-term outcomes
    Juvenile arthritis and family

5 Treatment and management

    Management strategies

Appendix A

    The International League Against Rheumatism classification of juvenile arthritis

Appendix B

    Data sources

Appendix C

    Definition of medical terms

References
List of tables
List of figures

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